Fibromyalgia
Disclaimer

Please be advised that I am not medically trained and the information found on this site should not replace the use of a physician. Information is found and researched in medical text books, online sites and other written material based on the subject at hand.

This site is to be used to be an educated patient/person and to hear from others who deal with the same issues and how they work through them.

Thanks for checking us out. I hope that I can help!

I still remain adamant about the fact that people take the privacy issue too far about whether the scanners can see one naked or not. This is especially true about the new software. Now, when an area alarms, a red X is lit up over the area on a cartoon figure noting an area of concern.

There are however, new concerns over the true amount of actual radiation being possibly administered during just one scan at TSA. let’s take a look at the numbers.

One DEXAScan (bone scan) emits .001 mSv

One regular x-ray (extrimity) emits. .01 mSv

One three hour flight  emits .0162 mSv

One pass through a Backscatter emits .0001 mSv

These numbers are based on facts that I located online, using medical sites, an interesting find on Quora and the Smithsonian’s Air&Space site. Please check them out for yourself.  A woman that I was flying with last week was adamant about the fact that the reports are wrong and that people “like us” that fly all the time, should avoid any extra exposure to radiation by going through those machines. She has a relative that works in the hospital and feels that it’s very concerning technology.

A little more recent research shows that the medical community at UCLA fears that there is also inconclusive research and that the facts are based on whole body scanning versus the skin as it really is. These scanners are not trying to see your insides, which is why my knee replacement doesn’t show a big X. They are concentrated on your skin and just underneath, which causes a greater concentration in exposure. But, how much is enough to cause further chance of cancer? Until the government does the appropriate testing, we’ll never know.

For those of us that fly up to 30 or more hours a week plus regular medical testing , perhaps getting the pat down versus the more convenient machine is the way to go until we do know?

 

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What do you do if you cannot sleep? I suppose that it matters why you can’t sleep but here’s what I do so that it doesn’t affect my affect my performance the next day. Read the rest of this entry »

Ropinirole is a pharmaceutical medication that is prescribed for Parkinson’s Disease and Eknom Syndrome (Restless Leg Syndrome) as a means of controlling nervous system problems that cause symptoms such as shaking and an uncontrollable urge to move one’s legs.

This is a medicine that had been the only thing so far that has allowed me to be able to sit or sleep at night after years of pacing the floors for hours on end. In the past month or so though, the same medication that I was taking up to three times a day began to make me violently ill. Severe nausea and vomiting became a guarantee within 30 minutes of taking my saving grace. But, why? I am now down to approximately 1/4 to 1/3 of one pill to avoid upset. Read the rest of this entry »

I have a few personal encounters that make me really sad and wonder how a mother could not know that something is wrong.

I met a woman today who told me that her daughter used to hit her head on the sidewalk when she was little. She thought that it would hurt and the little girl would learn not to do that anymore. She suffered for 11 years before receiving any help. Another woman was in the grocery store when her son was screaming and literally out of control, grabbing bags of apples and throwing them on the floor. Finally, a woman on an aircraft was traveling with a little boy still in diapers that literally screamed the entire flight from New York to Florida. He wasn’t a brat, he appeared to be genuinely distraught. So what’s going on? Read the rest of this entry »

Rheumatoid Arthritis is a system-wide disease.

It is an inflammatory disease where the patient’s own immune system attacks and destroys cartilage.

 

It is known that RA can cause swelling also called edema, which in my world I have first hand knowledge of. What I would like to know is if it’s the edema or the RA that is causing the intense arch pain and all over foot pain or is it simply the RA itself. Perhaps they are one and the same?

I was told by a massage therapist that it’s possible that due to the sudden weight gain (edema) that Plantar Facitits has developed. The plantar facia is the thick band of skin that connects the heel to the toes and

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pri·ma·ry

[prahy-mer-ee, -muh-ree] adjective, noun, plural -ries. adjective

1. first or highest in rank or importance; chief; principal: his primary goals in life.
2. first in order in any series, sequence, etc.
3. first in time; earliest; primitive.
4. of, pertaining to, or characteristic of primary school: the primary grades.
5. constituting or belonging to the first stage in any process.

I have one main physician, even after moving many states away. He has always been my go to guy and now doctors like this one may be paid more to keep me even healthier. It’s my Primary Care Physician.

If you have a cold, you go to the doctor. Your primary care doctor, right? So why if your foot hurts do you immediately pay more to go to a podiatrist who is only going to do an xray that is going to cost you more because he’s a specialist? Or better yet, you have chest pain. Read the rest of this entry »

 

Injectable once weekly Humira is now taking a cue from other medications like Boniva to try and offer a once a month option. In order to stay competitive with other companies offering anti-inflammatory drugs, more so oral pills like Pfizer’s tofacitinib, which may offer more appeal to a needle, the company also claims a smaller needle for a more comfortable injection and wider use.

Could the drug use being widened to include the treatment of colotis, which causes cramps and diarrhea, make a big enough impact despite the lack of proof of efficacy compared with standard dosing? Patients that suffer from Chrohn’s Disease would benefit from greater availability although it is not an unknown use for the disease.

Considering the fact that the oral dosing can be twice daily, I would certainly be interested in a once a month option even it were in the form of an injection if I needed it.

A decision from the FDA will not be made until later this year or early 2012. Hopefully it will bring good news to all who are waiting.

Would you chose and injection over a pill if it meant less to do or take?

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Okay, so it’s been more than a month and my foot still huts. The antibiotics that I am taking for an infection in my transplant kidney combined with the doubled Prednisone was supposed to work. It has done nothing for my foot, or knee for that fact, so I think back to when it started.

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Hello World!

I am sorry that I have not been writing. I have a few things on the list and just need to find the time to sit down and get the research going. Thanks for your patience and I hope all is well with you and your family during this wonderful season of Easter!

Thanks,

Christina

Yesterday while cleaning, I opened the door for just a few minutes. Next thing I knew, there were an entire family of bees in the house. Ok, so perhaps just the immediate, immediate family but either way it got me thinking about an article that my Mom sent me about honey and its health benefits. But, how much of this “research” is true and how much is wishful thinking.

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